Nigel Halliday 

Jonathan Bryan obituary

Other lives: Author and campaigner for the education of profoundly disabled children
  
  

Jonathan Bryan
Jonathan Bryan was born with cerebral palsy, which severely restricted control of his limbs and the facial muscles necessary for speech, but he learned to communicate using a spelling board and the movement of his eyes Photograph: none

Jonathan Bryan, who has died aged 19, following a short illness, was a poet, author and campaigner for the education of profoundly disabled children.

Born with cerebral palsy, which severely restricted control of his limbs and the facial muscles necessary for speech, Jonathan confounded the limited expectations that so often accompanied the label of profound and multiple learning difficulties (PMLD). With the support of his family – his parents, Christopher Bryan, an Anglican vicar, and Chantal (nee Suffield Jones), and two younger sisters – as well as carers, communication partners and specialists, he learned to read, and then to write, using a spelling board and the movement of his eyes. By the age of nine he had, as he said, “found his voice” and thereafter was able to join mainstream education, finishing in the sixth-form at Westonbirt school, not far from the family’s home in Wiltshire.

His first book, Eye Can Write, was published in 2018, when he was only 12, but revealed a mature capacity for empathy and love, and a lively and obviously mischievous personality. He recounted how at one point he spelled out “m-y”, at which point his helpers assumed the next character must be a space. However, leaving a pause for dramatic effect, he continued, “r-i-a-d-s”.

The book contains a number of his poems, including PMLD, a 23-line resigned expression of the low expectations many have of disabled people. But at the end is the invitation, “Now read it again backwards”. When read in reverse, the lines become a fierce assertion of the human will to learn and to communicate, regardless of disability. This astonishing feat of composition was helped by Jonathan having a photographic memory.

In 2018 he founded the charity Teach Us Too, to campaign for all children, of whatever level of physical ability, to be given a voice through learning to read and write. He continued to write poetry and publish works inspired by his strong Christian faith and hope, stoked by an experience, recounted in Eye Can Write, when, in a medically induced coma, he saw himself running through the fields of heaven in his promised renewed body.

At the time of his death, he was in his first year of studying creative writing at Bath Spa University. He and I both attended Widcombe Baptist Church in the city.

Jonathan received numerous awards, beginning with the Diana award, received from Princes William and Harry in 2017, involving an acceptance speech, delivered by his mother, to assembled dignitaries in the House of Lords. In 2022, he was named in the Disability Power 100.

He is survived by his parents and his sisters, Susannah and Jemima.

 

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